Rare Connections: Stories from Our Ben’s Friends Family

Welcome to “Rare Connections: Stories from Our Ben’s Friends Family.” Here, you’ll find heartfelt testimonials from members of our rare disease communities, sharing how Ben’s Friends has impacted their lives.

These stories illustrate the power of connection, support, and understanding that our online communities provide to those facing rare diseases and chronic illnesses. As you read these personal accounts, remember that your support helps us continue to be a lifeline for thousands of patients and their families worldwide.

Together, we ensure that no one faces a rare disease journey alone.

Learn more about Ben’s Friends and the impact of your donation >>

What Ben’s Friends Means to Richard

Messages from Recent Donors

I was diagnosed with Eagles Syndrome in 2021 and had surgery in 2021 and again surgery on both sides October 2024. I continue to heal from the surgery and can only hope that it works. I understand what it feels like to struggle with getting help for Eagle syndrome and diagnosis is always a challenge. I wish all of you the best. – Anonymous

With many thanks to the moderators of the Eagle Syndrome site and their ongoing support. Without them, I would not have found a surgeon or received necessary treatment. Their organization skills, list of medical providers and general knowledge about the syndrome is incredible and life changing. – Anonymous

I’m approaching the ten year anniversary of the event that drastically changed my life. Early on, I leaned heavily on this community as I struggled with why. Now, I try to be the reason why I’m still here. I’m extremely grateful for the support and hope that those in need find Ben’s Friends! – Jeremy H.

Exciting News: Double Your Impact!

An anonymous donor has stepped forward with an incredible $10,000 matching gift challenge! 

For the next two weeks, every dollar you donate will be matched, effectively doubling your contribution. This means your $50 gift becomes $100, a $100 gift becomes $200, and so on.

Don’t miss this opportunity to maximize your impact. With your help, we can reach our $50,000 goal and ensure that no one faces a rare disease alone in 2025.

Moltroub, Brain Aneurysm Support Moderator

Isaiah, Living with Eagle Moderator

Thank you Ben’s Friends! – Lisanne K.

Ben’s Friends Thank You from Seenie

Learn more about Ben’s Friends and the impact of your donation >>